We've had some great response from people wanting to join us at the Brains Together For A Cure walk on October 8th. We've ordered t-shirts and will sell them on a first come first serve basis and donate the proceeds. More details to follow on that, but we will be looking good out there in our lime green "Shannon the Cannon" t-shirts! Some of you have inquired about making other donations. Please contact either Kula Shives (kpshives@charter.net) or Ellen Wente (tewente@aol.com) as they have all the details on the Shannon Fund and Brains Together For A Cure donations. Thanks.
It has been a perfect storm of stressful situations lately. In the grand scheme of things, all small potatoes: Shannon and Erin home sick with the season's first head colds, work stresses for Dan and I, winter sports tryouts for the girls, blah, blah, blah... Each thing individually is not a big deal, but the cumulative effect is wearing on us. As a friend of mine said, it's hard to prop your kids up and even harder when your own tank is on E. It seems so silly to worry about the small stuff - my family is trying to learn to live with childhood cancer so why exactly am I worried about what team my kids will be on? Am I insane? Or, maybe that's exactly why I am stressing about the little things - if you don't want to look at the big picture, obsess about all the little pictures...
Shannon is feeling good this week. The post chemo fatigue is over and her energy has bounced back. Her Monday consisted of a full day at school, homework and french horn practice, soccer pictures and soccer practice, and finally an hour on the ice at hockey camp. Today after school she spent her time hanging out with a friend and shooting hockey pucks. She has plans to double up again tomorrow with soccer and hockey. We are also going to try again tomorrow to taper off the steroids. Dr. Rao gave us the go ahead to try every other day for a week and and if Shannon can tolerate that with no headaches, then she can try to taper off completely. It's a hurdle that Shannon wants to clear, so cross your fingers ...
