Monday December 19, 2011

Things are status quo for Shannon. No right side improvement and the fatigue continues to beat her down, but no vomiting or nausea, and she is tolerating the Crenolanib. We had a short day at St. Jude - just a visit to E Clinic for Dr. Wetmore to eyeball Shannon. We are still on target to come home this weekend for Christmas, but our plans going forward are in flux. Dr. Wetmore has some trepidation about us being home for 11 days with the condition that Shannon is in, and rightfully so. It might be time for another new plan ... we will keep you posted ...

The highlight today was the arrival of friends Anna, Hallie, and Tommy Olson in time to meet us at St. Jude. Anna is one of Shannon's BFF's and Erin and Hallie are school and basketball buddies, too. Lots of smiles from Erin as she and Hallie enjoyed some outdoor time, including a great hike with their dads and Sunny at a nearby park. 


Anna was content to hang with Shannon, watching her sleep and upon waking, reading her all the cards and well wishes the Olsons had transported from friends back home. No appointments scheduled tomorrow, so we are hoping to do a little sightseeing with a trip to the National Civil Rights Museum. That's the plan. Here's hoping Shannon's energy level and comfort allow ...